Here’s a list of general questions and assumptions that I’ve come across about OCD and eating disorders. In less than a fortnight I went from having a ‘likely hernia’ to a biopsy-confirmed Squamous Cell Carcinoma, up my bum. Several tests and 5 weeks later, I’d lost vision in both eyes, plus my feet and face were numb. So I walked to the emergency room. The guys are hilarious while also discussing pretty serious health issues. 934 Likes, 35 Comments - Sickboy Podcast (@sickboypodcast) on Instagram: “What better way to cap off our mini Ontario tour than with an eye opening and beautifully…” Tag 4 friends you’d bring and write a short…” THE LESSON COVID-19 TAUGHT ME ABOUT LIVING WITH CMT DISEASE, 4 Life-Changing Products for People with Neuropathy & Hand Weakness, THE LEG BRACE FRIENDLY DENIM & BOOTIES I’M FALLING FOR NOW, Lessons I’ve Learned about Life & Disability at 50. As far as a go-to piece, it could be anything from my Soia and Kyo moto jacket, to a pink cocktail dress, to my favourite, worn-in yoga pants. Then you're in the same as most other people.. XLP is called an orphan disease as it is rarer then rare. Sickboy Podcast. Sickboy DMC Hooded Sweatshirt. Ashifa Kassam in Toronto @ashifa_k. It’s important for me to demystify the connection between disability and beauty for totally selfish reasons, like, I refuse to stop being pretty just because I have MS. With no family history, an active & healthy lifestyle, and an otherwise clean bill of health… I was definitely a little surprised when, at 26 years old, I heard the words “You have cancer”. ​ Sickboy Admin May 12, 2016 Comment. It's a movement.A community built on the foundations of compassion, vulnerability, and humour. But I knew I was done. Her blog Tripping On Air is the irreverent, insider-scoop about MS that manages to inspire without ever being saccharine. It may seem diminishing to call myself a handicapped gay kid…. It’s such a drag to lay it all out. It’s tough, but we need to be the ones who stand-up (or sit-up) and say, we’re here and we’re as entitled to beauty, and sex, and joy, and life as much as everyone else. Ardra Shephard is a devastating illness expert. Meet Ardra Shephard of Tripping on Air and Sickboy Podcast: I’m not usually one for the uncomplicated. My all-time favorite book would have to be Anne of Green Gables (LM Montgomery). It’s frank; it’s funny; it’s what you’d want your best friend to tell you about what it’s like to live with chronic illness. Everything about my daily life is planned around MS. Sickboy Admin May 18, 2016 Comment. By not speaking up, I was contributing to the very ideas I was rejecting. I cried a lot. You don’t want to hear about my weak, spastic legs, painful purple feet, unreliable GI system, the ins and outs of self-catheterization, or how boring MS fatigue can be. “If all you can do is crawl, start crawling.” (Rumi), Listen to us talk with Ardra about life with MS on the EmBRACE It Podcast Season 2 Episode 2. 10K likes. Sickboy follows 29-year-old Jeremie Saunders as he lives openly with Cystic Fibrosis and devotes his life to removing the stigma attached to chronic illness and disease. I was 23 and woke up one day with a stabbing pain in my eye, and for about a week I was tired like I’d never been tired before. Meet Ardra Shephard of Tripping on Air and Sickboy Podcast: Ardra Shephard is a devastating illness expert. My blog is a way for me to declare that, yeah, I have MS and I’m actually pretty kick-ass. Epic hangover was also a possibility. I loved jogging and rumba aerobics (now known as Zumba), and was grateful to have wholesome, fresh food available. Regular price From $14.99 . Sickboy Crew - Unisex T-Shirt. Source: Sickboy Podcast Mask Deniers & Pseudoscience BS w/ Dr. David Kyle Johnson This Friday we're jamming on Big fines, big advancements and big wankers in the world of "science". He would explode with happiness when he got to get out of his chair at school to play with his friends on the mat. The podcast helped me to realise I may have these medical conditions but it isn’t so bad! So many reasons to not write a blog. It’s exhausting having to navigate peoples’ misinformation. Ardra was named one of the Top 50 MS bloggers “in the universe” by feedspot.com, one of the Top 25 MS bloggers by healthlabs.com, and was featured on Sickboy Podcast (October 2017). Sickboy Podcast. In 2013, he appeared in the horror anthology film V/H/S/2. They chat about what it is like to be sick. 9,9 k hou hiervan. I will not let anyone tell me who I am. Sickboy Podcast. It’s all in the details. Regular price From $19.99 Sickboy Podcast . Want us to do a live show next month? I thoroughly appreciate the beauty of ambiguity, of living in a world of colour instead of black and white. My mind was a rollercoaster. But if I’m being real, it’s Netflix. They chat about what it is like to be sick. The show started with three best friends who recognized that when faced with difficult situations, illnesses and diseases, people tighten up, they get awkward, and they simply don't know what to say. Taylor is extremely lucky to be alive and our baby boy has a long road to recovery. This is especially frustrating when the world depends on you being able to communicate effectively and efficiently. It's given him a great story that takes him too long to tell. Sickboy Podcast. I clammed up and began to reject the idea that MS could have anything to do with my identity. I had no control over emotions or thoughts and I didn’t know why. Part of the film was directed by Blair Witch Project director Eduardo Sanchez. *Ticket* Sickboy LIVE IN Edmonton @ Foundry Room - May 15, 2019. In April 2018 I found a small lump on my bikini line. I was initially open about my diagnosis, and this had consequences I hadn’t expected. It never occurred to me that this was something I was expected to give up, but that is kind of what society demands. Wed 31 Oct 2018 00.00 EDT. Are you currently thinking what the heck is that? Ever heard of XLP? It's taken away Jeremie's patience with Tay's long-windedness. I’m talking fall-asleep-at-Starbucks-with-a-venti-in-my-hands next-level tired! 13.4k Followers, 1,967 Following, 64 Posts - See Instagram photos and videos from @sickboykks I was having trouble walking, and an MS diagnosis was confirmed. XLP  is a illness that effects 1 in a 1,000,000 men. Sickboy Podcast is the brainchild of 3 friends, one of which has cystic fibrosis. Hey I am Adam Delorey, I went into heart failure at the age of 13 when my ejection fraction (heart function) was at 11%!!! I speak four and would love to learn more. I’m not going to fade into the background, and I will not be othered. Sickboy Admin May 25, 2016 Comment. Without further ado…. Copyright © 2017-2020 Trend-able.com All Rights Reserved. I can argue until I am blue in the face that fat people can be healthy (which they can! Regular price From $45.00 My name is Melissa, I’m 29 and I have Profound Unilateral Hearing Loss. The Sickboy Podcast began in 2015 and destigmatizes what it’s like to live with chronic illness. As a member of Sickboy Podcast, he is known for living with the genetic lung disease cystic fibrosis. Anne Shirley had a profound impact on me growing up. Sickboy is more than just a podcast. Join the tens of thousands of people across the world in changing the conversation surrounding illness, and dying with laughter in the process. If Justin bought our stuff, he'd probably buy this one. If I really think about it, it’s still kind of stunning. Advancing MS can be a moving target, but when things are relatively stable, disease management becomes habit, automatic, like brushing your teeth. I thought maybe I had a migraine. He would wave his arms and smile and giggle as the ramp lifted his chair onto the bus. Join hosts Jeremie, Brian and Taylor as they hangout and laugh about the absurdity of illness and life! Despite my healthy lifestyle, at 22 years old, I was diagnosed with. Since it is our first baby we don’t truly know the full experience we missed out on. It can take years to get an MS diagnosis, but I nailed it in just 6 weeks. You won’t see me using sign language or using subtitles though...I actually function just fine, to the point that you would probably never realize I am considered clinically deaf. Jeremie’s life expectancy is shortened. I love my closet and whole-heartedly believe in the transformative power of fashion. It was a bit of a draggy foot that I credited to being overweight and out of shape. 9.5K likes. He married Bryde MacLean in 2011. Follow @sickboypodcast on Instagram for more shenanigans like this! I’ve struggled with what standing behind a mobility aid does to my appearance and have even tried to dress my Nexus (rollator) up by painting the orange, plastic knobs with a gun-metal Dior nail-polish. Because it's named after him. Hey I’m Ashleigh, also known as the girl who’s organs are falling out of her Va-jay-jay. Bryson would be full of joy each morning when the school bus stopped in front of our house. I thought my life was over. I’m a mix between investment pieces and comfy lounge wear, but I try to love everything in my wardrobe. Going through your entire life having difficulty communicating your thoughts is frustrating, especially when you know exactly, for the most part, what you want to express. The show started with three best friends who recognized that when faced with difficult situations, illnesses and diseases, people tighten up, they get awkward, and they simply don't know what to say. It is so refreshing to be able to openly discuss something that is a huge part of your life without trying to find pleasant ways to word it to avoid making others uncomfortable. Regular price From $20.00 . Look & Feel Your Best With The LatestTips, Hacks & Trends ), but sometimes talking about health masks the real issue, which is that people of all sizes deserve respect and fair treatment, regardless of their health status. Through those uncertain and stressful teenage years, I tried to live a healthy life. Her blog Tripping On Air is the irreverent, insider-scoop about MS that manages to inspire without ever being saccharine. I’m a nerd for learning languages. I grew up in Medellin, Colombia, the City of Eternal Spring, where the weather is always perfect but drug cartels waged wars through the late 80s and early 90s. These things matter. A week later I couldn’t see out of my painful eye and was suddenly deaf in one ear. 9.7K likes. At this point I knew it wasn’t a hangover, but I really thought I just needed some antibiotics. Sickboy Admin April 22, 2019 Comments Older. A culmination of his affinity for laughter and education, Jeremie founded Sickboy Podcast which he produces and hosts with his two best friends. I hope that while reading this, you will come to understand how this has  has affected my life. Sickboy Podcast is hilarious, ridiculously insightful and absolutely determined to break down the stigma associated with illness and disease! Nobody does. In Sickboy, you'll find no stiff advice from doctors, or buttoned-up discussions about diseases and treatments.The podcast’s hosts Jeremie Saunders, Brian Stever, and Taylor MacGillivary want none of that. Spiritualism > Alcoholism: Addiction & Recovery, The Arthritis Dietitian: Rheumatoid Arthritis and a disease from IKEA, Recommendations for Grieving w/ Bryde MacLean, "Stage 4 Breast Cancer?? From bouncing off windshields like a basketball to a mysterious theft of $400 glasses to lacerated internal organs. I have what is called a pelvic organ prolapse and it’s pretty painful and shocking when you first notice it. Regular price $20.00 236 Likes, 20 Comments - Sickboy Podcast (@sickboypodcast) on Instagram: “Recording some episodes in Vancouver this week - what are some topics you’d like to hear us cover?…” Having trouble walking, and humour the Following few days in the transformative power fashion... Aerobics ( now known as the ramp lifted his chair at school to with... 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